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    Home » Chronic illness

    Published: Feb 2, 2019 · Modified: Sep 8, 2022 by Claire · This post may contain affiliate links. As an Amazon associate I earn from qualifying purchases · 14 Comments

    Attempting to be a low histamine vegan

    Every year, for the past 5 years in the UK, there has been a movement known as ‘veganuary’. People pledge to give up meat, dairy and all animal products for the month of January and eat a vegan diet.

    Each year increasing numbers of people take up the pledge and there is a lot of media attention on veganism. And each year I think about taking part, but haven’t done so. This year I gave it a go, and this is my experience of being a low histamine vegan . . .

    orchard with trees with red apples and ladders against them.
    Jump to:
    • Why did I try to be a low histamine vegan?
    • MCAS, a low histamine diet and veganism
    • My attempt at being a low histamine vegan
    • But then it went wrong . . .
    • Admitting defeat
    • Useful Resources
    • UK Amazon product links
    • 💬 Comments

    Why did I try to be a low histamine vegan?

    As someone who hasn’t eaten meat since childhood, only re-introduced fish in the past two years and is rather lactose intolerant so hasn’t drunk milk for about ten years, the idea of being vegan (or plant-based) has been rather intriguing.

    For both health and ethical reasons, I have chosen not to meat from a young age. When I decided, age 11, to stop eating meat my mum was supportive, but presumed it was a phase. A few decades on and I think she has realised that it isn’t!

    Despite being vegetarian I continued to eat dairy and eggs (always free-range). But over the past few years I have toyed with taking it one step further and being a vegan. There is so much more provision for a vegan diet in the past few years, with cafes providing vegan options and supermarkets having increasing numbers of vegan ranges and products. It seems easier and easier to be vegan, or plant-based.

    can you be a low histamine vegan

    MCAS, a low histamine diet and veganism

    But there’s a catch to this seemingly easily transition to being vegan for me personally . . .

    A few years ago I was diagnosed with mast cell activation syndrome and for the past year or so have been eating a low histamine diet as a means to control the condition and ease my symptoms. MCAS, as it is known, to put it simply means that your mast cells, which all of us have, release too much histamine and other chemicals. It is condition that has an association with the conditions postural orthostatic tachycardia syndrome (POTS) and hypermobility Ehlers-Danlos syndrome (hEDS), both of which I am diagnosed with.

    If you have MCAS you may have been advised to eat a low histamine diet, perhaps alongside taking anti-histamines, mast cell stabilisers and quercetin.* To help me further with my diet, I saw a dietician who specialised in the condition and who recommended that I try a low histamine diet (it was also recommended by my immunologist). She was also very helpful in recommending certain food items, such a protein powder that I have included on my low histamine shopping list page, in case that is helpful.

    Just to make things a bit more tricky, however, I also have to avoid some high fodmap foods due to having IBS (irritable bowel syndrome), and more recently having been diagnosed with SIBO (small intestinal bacterial overgrowth). For me personally, foods including broccoli, apples and cow's milk are a no-go, or can only be consumed in small amounts.

    bag of apples standing on grass

    My attempt at being a low histamine vegan

    Despite my already restricted diet I decided this year to give being a low histamine vegan a go. I hadn’t ever intended to make this a permanent shift, but I was curious to see if it had any impact on my health. It was to challenge myself to see if I could have more vegan meals or entire days of eating a vegan diet with a view to potentially decreasing my dairy intake a little in the long-term.

    The first few days were easy. I started my day, as I always do, with porridge made with plant-based milk. I either did it with fruit, nuts and seeds, or my carrot cake porridge. Lunch and dinner were based on recipes such as my quinoa vegetable soup as a source of protein with more nuts and seeds, especially hemp seeds and sesame seeds for their protein and calcium content, respectively. I ate even more vegetables than I usually do, which is already a lot, and included things like coconut milk into dishes. Pasta, rice and potatoes were consumed voraciously!

    attempting to be a low histamine vegan

    But then it went wrong . . .

    After 4-5 days I started to feel two things: hungry and bored. No matter how much food I ate I was still hungry, especially at night. I went to bed with a slight hunger that ultimately meant I wasn’t sleeping as well. Not a great idea with vestibular migraine and other chronic illnesses.

    Getting bored

    I was also bored of my meals. Usually a vegan or plant-based diet is full of foods that I absolutely love, and which you can make delicious filling meals with. I am one of those people who loves vegetables and would happily eat chickpeas, beans and lentils. This is where the problem lies for me. As a low histamine vegan, a lot of foods are restricted that usually make up a large part of that diet – think tomatoes, spinach, avocados, some herbs and spices.

    And not enough protein

    More problematically, most vegan sources of protein are also restricted on a low histamine diet – beans, lentils, chickpeas, tofu, tempeh, seitan, quorn etc, and I know that I cannot tolerate them. So my protein sources were heavily restricted to quinoa, some seeds and nuts and the more tiny amounts found in vegetables. Basically I wasn’t getting enough protein to satiate me or fuel my body for its needs.

    I had foreseen that lack of protein was a potential problem and had planned what I thought would be a good list of meals and snacks to overcome this. So I prioritised having a smoothie with Pulsin brown rice protein powder everyday as my dietician recommended it as a good option for those on a low histamine (and vegan) diet, I ate smoothie bowls making sure to omit honey and high protein quinoa salad bowls. I was eating many, many, energy balls, going through seeds at an alarming rate and buying a packet of quinoa every few days.

    But it wasn’t enough. Aside from being repetitive, eating a low histamine vegan diet for all meals, rather than one or two a day, just wasn’t sustainable for me. I was hungry, not sleeping well and didn’t have as much energy. At a time when I am trying to to increase my fitness levels it just wasn’t working. I need to fuel my body to function in the best possible way. To help my muscles propel me around the park when I want to run, and my brain to concentrate when I am working. I need adequate quantities of protein, as well as carbs, fats, vitamins and minerals.

    woman wearing an orange dress in a field

    Admitting defeat

    Reluctantly then, I had to admit defeat after about ten days. It frustrated me terribly me to do this, not least because I had made a pledge on the veganuary website and hate giving up on a challenge I have set myself. My health, however, has to come first. I am dealing with enough issues as it is. Adding extra fatigue and hunger into the equation is harmful to me.

    In all honesty, I wasn’t sure whether to post this piece at all in case I got a lot of criticism (not from my usual followers who are lovely, but others). If you are reading this and are tempted to criticise and tell me I didn’t try hard enough then please try and put yourself in my shoes first. Chronic illness is tough and has to be managed by each individual in the way that is best for them, and for their body. My needs are different to someone else with the exact same health issues, and probably very different from someone who doesn’t have chronic illness to factor into their diet and lifestyle choices.

    In my experience being a low histamine vegan full-time isn't possible, but I may well transition in the future as I come to know better ways to fuel my body on a plant-based diet. I regularly eat vegan meals, often two a day, and love them. I feel healthy and light, and they are always delicious.

    I really enjoy putting together low histamine vegan recipes and share many on this blog. You can find them on my low histamine recipes page and I also have a round-up of my favourites on my post low histamine vegan recipes. I will definitely be sharing more, so come back for more plant-based ideas!

    I’m always in the kitchen, often cooking vegan meals, so come join me on Instagram and Facebook to be the first to hear of new recipes.

    Useful Resources

    If you have MCAS or other mast cell disorder, or histamine intolerance, you may find these resources helpful:

    Books

    Mast Cell-Friendly and Low Histamine Cooking: Diet Guidance and Recipe Collection

    Never Bet Against Occam: Mast Cell Activation Disease by Dr Lawrence Afrin

    Mast Cells United by Amber Walker

    The 4-phase histamine reset plan by  Dr Becky Campbell

    Websites

    Mast Cell Action

    The Mastocytosis Society

    Don't forget to pin the post!

    attempting to be a low histamine vegan

    UK Amazon product links

    Mast Cell-Friendly and Low Histamine Cooking: Diet Guidance and Recipe Collection

    Mast Cells United by Amber Walker

    The 4-phase histamine rest plan by Dr Becky Campbell

    Never Bet Against Occam by Dr Afrin

    *always seek medical advice before trying a new supplement

    Please follow the advice of your doctor as to all medical treatments, supplements, and dietary choices, as set out in my disclaimer. I am not a medical professional, and this is simply my story and the resources that are helpful to me.

    This post contains affiliate links.

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    Reader Interactions

    Comments

    1. Christie says

      April 29, 2023 at 11:46 am

      I am so thankful I have discovered your website and that you decided to post this article. I have all of the same diagnoses as you, and I used to be plant based. I grieve everyday that I can no longer eat a vegan diet, or even be a vegetarian, due to all of my intolerances. Thank you for reminding me that I am not alone in this world.

      Reply
      • Claire says

        April 29, 2023 at 6:25 pm

        Hi Christie, it's definitely tough having to make changes to our diets isn't it. So glad you find the website helpful.

        Reply
    2. Robyn says

      March 20, 2023 at 5:18 pm

      Claire,
      Thank you for this article!
      I too have MCAS and SIBO meaning already difficult low histamine low fodmap diet. Wanting to prevent cancer I started to be vegan again about 10 days ago. So challenging to find enough protein and iron for my body and to fuel my exercise daily!
      I feel pretty terrible since I can’t have the typical vegan proteins. Rather than pressing on I am going to add some animal protein once a day and still be veggie heavy. I want you to know you are not alone in this difficult and often lonely journey with these food restrictions and conditions. I wish healing for you.
      Robyn

      Reply
      • Claire says

        March 20, 2023 at 9:28 pm

        Hi Robyn, it's very difficult to be so restricted isn't it and not necessarily make dietary choice that we would wish to. I'm also quite veggie-heavy and find it works best for me, so I hope your diet going forward works for you too. All the best, Claire

        Reply
    3. Tim D says

      January 21, 2023 at 10:16 pm

      Hi Claire,

      I am a vegan with MCAS and every nutritionist or functional medicine practitioner I reach out to online does not recommend a vegan diet. I really want to find a vegan way to heal from MCAS. What animal products did you reintroduce into your diet?

      Reply
      • Claire says

        January 22, 2023 at 9:43 am

        Hi Tim, perhaps seeing a registered dietician who specialises in the diet would be helpful. It's very individual as to which foods are suitable, and may vary depending upon other health conditions. I hope you a positive way forward that works for you.

        Reply
    4. Lee says

      October 27, 2022 at 3:22 am

      Chia seeds and buckwheat flour. You can make chia seed bowls for breakfast and buckwheat flour savoury pancakes. Both are low histamine, vegan and filling, plus good protein.

      Reply
      • Claire says

        October 27, 2022 at 8:37 am

        Hi there! Glad you found something you enjoy. Unfortunately buckwheat is rated as higher histamine on the SIGHI list, which I have been advised to follow, so it isn't suitable for me.

        Reply
    5. Melissa says

      December 27, 2020 at 11:15 pm

      Wow! Love your honest experience. I had to rely on most high histamine foods to eat plant based. I already find eggs dairy and gluten problematic but need to continue clearing histamine because I've had so much inflammation. I constantly hear the benefits of plant based but it's near impossible to not become nutritionally deficient and continue. I too was frequently hungry. I felt best when I tried to pair healthy, fat, fiber and protein in each meal to stabilize blood sugar, reduce the burden on my liver and limit histamine rich foods. Cooking special meals in addition to cooking for my family each night is also challenging. Your post makes me feel better, I've been feeling like I'm doing something wrong. Hope you have found the right meal plan for you. Thanks for sharing!

      Reply
      • throughthefibrofog says

        December 28, 2020 at 12:57 pm

        Hi Melissa, I don't think any of us are doing something wrong, it's just really tough to try and eat a balanced diet with a lot of restrictions. I wonder if you would find it helpful to see a dietician? For me, eating low histamine is the important bit now and I'm thankful I am OK with some dairy and gluten. We are all so different though, so a specialist may be able to offer some guidance. Hope it goes well for you.

        Reply
    6. Stacey Dahn says

      February 05, 2019 at 12:17 am

      You are doing the best you can for you and better than it trying at all. That is what matters.

      Reply
      • throughthefibrofog says

        February 05, 2019 at 6:52 am

        Thank you! I think we all need to find the diet that bests suits us and our health.

        Reply
        • Laura Tudor says

          January 07, 2021 at 9:00 pm

          Thank you so much. I struggle so much with my body being undernourished as a low-histamine vegan and adding eggs/young cheese (humane as much as possible because the dairy industry is evil) and wanting to be a vegan!

          Reply
          • throughthefibrofog says

            January 07, 2021 at 10:21 pm

            I hope the post helped, and that you can find a balance that works for you.

            Reply

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    Hi, I’m Claire. After a diagnosis of MCAS I began to follow a low histamine diet, which has helped me manage my symptoms. Here I hope to show that a restrictive diet can still be full of flavourful meals, and help you enjoy being creative in the kitchen.

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